Sunday, May 24, 2009

Home again, home again, jiggity jig.....

Well, as the title alludes to, we are home again. Hopefully this time for quite a while and not just a few days. Tuesday morning after a very uneventful few days Logan woke up around 4 am with an exploding diaper. Boy will I miss those some day. This is not out of the ordinary at all as the Kaexalate causes him to have diarrhea-ish, explosive poops. It keeps him alive though so I guess we'll keep it around. : ) While I was changing his diaper I noticed him shivering. My first thoughts were, "hmmmmm....he did this last time at the beginning of infection." I took his temperature and it was really low grade. Looked at his drain bag and it was clear with no fibrin. So, we went back to sleep. When I woke up in the morning I recalled the low grade fever and went to check the bag only to find it looking like dirty water with TONS of fibrin swimming around in it. Well, blah. I call to Corpus and of course we need to bring him in because it means the infection is back. From here out I go into panic mood thinking of all the possible bad things this could mean. We pack quickly and for the first time ever, Vidal comes with us. YAY! This is really great because the last few hospital visits he has said he felt very helpless. We dropped the big boys over at my mom's and then took off. On the way, I got pulled over and got my very first ever speeding ticket. At least I have something to hold over Logan's head one day, LOL. Mr Police Officer was not at all concerned with the very sick child in the back seat. Though in his defense, I'm sure he had not clue as to what peritonitis is and how serious it can be. And he really didn't know that this was an infection coming back, making it a bit more serious. I wasn't driving crazy fast but defintely over the speed limit. I admit it. In my defense, there was no shortage of horrible thoughts coming into my head about why the infection was back two of them being that it had now become a fungal infection as well and the other being that this was an antibiotic resistant infection. Again, there is not a high mortality rate in these children for no reason. And as I've visited before the thought no matter how slim the chances of having to bury one's child is just about every parent's worst nightmare. Though I know I shouldn't have been speeding, I think most people would have in my position. I'm going to call on Tuesday morning for an appointment with the judge to see if maybe he can lower the ticket amount as money is hugely tight. For that matter, I would prefer community service. My mom said I already was, working with a disabled child. I don't think your own counts as community service mom. : ) Considering this is my first EVER speeding ticket in 10 years worth of driving AND it's only my second ever ticket the first being for an expired inspecition sticker, I'm thinking the judge may at least hear me out.

Once we got to the hospital they ran tests and admitted us. Logan was running around happy as could be to be "back home." He loves the hospital. It doesn't phase him a bit. He loves flirting with the nurses, CNAs, and heck even the maintenance guy. Dr Al-Akash was kind of at a loss as to why the infection came back as it should have been adequately covered by the two antibiotics he was on and the dosages were adequate as well, or so we all thought.

Logan was on dialysis 20 hours a day in the hospital since when there is an infection the peritoneal membrane doesn't function as well. This was really interesting and we made up all sorts of games for in the bed. Trying to keep a 15 month old in a bed for 20 hours a day is quite the task. It would have been 24 hours a day but Dr Al-Akash gave Logan 4 hours off a day for good behavior. During Logan's 4 hours off we ran him and ran him and ran him. It turns out that because Logan is such a great urinater, he needs a higher dosage of antibiotics than normal. With the increased dosage, the infection seems to have gone away completely. And Logan is still happy and running around with his 8 hours a day of freedom. 16 hours a day/night of dialysis does raise some challenges while still trying to homeschool Cristian and keep Jaden out of trouble, oh yeah, and trying to keep (get) this house in order. Thank you Fly Lady for helping me to get slightly more organized. Though I am definitely not even close to being all the way organized--you'll know if you've seen my house, I'm definitely on my way there. It was awesome coming home to clean bathrooms and a clean kitchen.

It is awesome to be home again! I missed my big boys a ton. It seems that they are a half foot taller since the last time I saw them. I also missed my bed so much! It's amazing how much your bed is an extension of you. And since my sweet Logan is kind enough to make sure that I change my sheets everyday--my bed is always so nice and fresh.

Well, there is much laundry to do and I don't see the maid anywhere so I guess I will get to it. The chore that never ends.

Before I forget, Driscoll has quite a few new dialysis patients and so if you could find it in your hearts to pray for them all that would be awesome. I don't know their names or anything but God knows who they are. Also, our friend Baby Finn will be going in for surgery to put a new central line in and he and his mama could really use some prayers as well.

2 comments:

Gracie said...

Jess your strength amazes me! I love you had will keep you and Logan in my prayers

Leah said...

Ditto to what Gracie said. Your strength is amazing! Thanks for coming by my blog to Toot your horn. We all need that encouragement. Cheers to your dishes and laundry being done! Darn those dishes and underwear! ;)