As a lot of you guys already know, Logan's results came back on the genetic blood test for cystic fibrosis. And they are NEGATIVE!!!!!!!! YAY!!!!!!!!!! This test picks up about 90% of Caucasian strains of CF and 60% of Hispanic ones. So, the odds are definitely in his favor at this point since he has no signs (other than the bilateral absence of the vas). I am sooooooo excited! I doubt we'll even do another sweat test unless he starts showing signs. Even though it's not 100%, I feel like we're turning a corner. The lows seem to be lessening and I feel like everything's going to be okay. I haven't always felt like this. I have given it over to God and I'm not worried anymore. Careful. yes. Thankful for every minute we have with this child. Yes. But, worried? No. It's really a pointless emotion at this point. All I can do is my best and I pray that it will be enough. These little guys are so fragile in a sense. And then on the other hand they are such intense fighters. With everything they have to go through, they seem to do it with a smile on their face. If only I could be as strong as Logan and Matthew and Gavin and Aidan and the many others. God has given them quite a line to tow and yet they seem to do it so well. I know I could never be as strong as any of them.
I feel very hopeful tonight. While I know that transplant is still a long way away and even transplant is not a cure but a treatment option. But, I know that when we are done with dialysis, the time spent on dialysis will feel short. And really, in comparison to his lifetime it will be short. I talked to Matthew's mom today (Logey's baby dialysis partner in crime at the kidney center). He's still in the hospital but should be going home soon. Matthew is her first baby so she doesn't realize how much harder it is to have a baby on dialysis. It's normal for her. I hope that after all is said and done she finds the love of her life and in addition to Matthew she gets to have a healthy baby. She is an awesome mama! I feel for her, you can't get much sleep up there on the 7th tower. Hopefully they will be home tomorrow.
Wiring Diagram Switch
2 years ago

5 comments:
that is awesome news momma,,, and No you cannot eat my child ;)
That's awesome Jess! One less thing to even think about...as for worrying I am in your boat. It gets us no where and just gives us more gray hairs...well at least me.
It really doesn't get us anywhere. I swear I had no wrinkles until Logan came along.
why not? she looks so tasty!
Jess- I am a firm believer in giving everything to God. Our problems and our praise. I will say The Stations of the Cross for Logan this week and have some kids in my class do the same! Stay strong!
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