Logey update

Let's see. where to begin? On Monday afternoon we were preparing to take Logan to the hospital for his clinic visit, etc. I changed his diaper at 5 pm and got his machine ready and was all set (for once) to get him on his machine early, at 6 pm. I noticed his side was a bit damp and checked his diaper. Hmmmmm...Nope. Completely dry. Then I checked our water dispenser to see if the kids had been playing in it. Nope. So I figured he must have gotten into the dog's water bowl. I finish changing his diaper and clothes and get him in a onesie for bed. Then I go to put him on dilaysis.............and notice a BIG tear in his catheter. Darn it! So, I called his dialysis nurse to let them know we were coming. Then I called my mom to tell her to pack now and Vidal to come home and help me pack up. Once we got there it was a bit crazy until we got everyone down for the night. His lovely dialysis nurses came out at almost midnight and changed out his transfer set and put an extension piece so he's all intact again now. We ran antibiotics for 3 days in his dialysate since a tear is a HUGE risk for infection. Then when we got to our room I realized somehow we forgot to bring his connection for his feeding tube. That was an ordeal and I was so worried since he needed his kaexalate and I knew he was probably starving. Luckily the nice man from Russel Medical came out to bring one to us at 1 in the morning. YAY nice man at Russel Medical! On Tuesday Logan had his clinic visit. Dr Al-Akash wants us to try Suplena on Logan since it has less potassium than Pediasure. He will now be getting 1 can of Suplena and 1 can of Pediasure plus whatever I pump and he nurses. Guessing about 7 oz total. This SHOULD help him gain some weight. Crossing fingers, toes, and even nose. Oh wait, guess not. Wednesday was his surgery to repair his hernia on the right side. It's all fixed and his scrotum looks so much more comfortable. Dr Almond did not find the right vas deferens as I figured he wouldn't. What this means: Logan will not be able to have children naturally, at least not until technology figures out a way to make a substitute. Sorry Gabby! Also, is an indicator of cystic fibrosis. Again. Sigh. Other than that, surgery went well and he was up playing within an hour. Thursday we went for his sweat test. Which was.......inconclusive. Again. This kiddo just does not sweat. I was sweating under him but did he sweat, no! Dr Al-Akash ordered blood work for the genetic variation of the test. I've decided that I'm going to go be tested to see if I'm a carrier. We rule out me being a carrier, we rule out cystic fibrosis. Logan's had a low grade fever through all this but he is such a trooper. He even went with us to co-op today because he was feeling pretty well. Co-op went great. I really feel like I'm getting to know more people there so that's great. Cristian is having a blast in his science class! We ordered him a new 2nd grade curriculum this weekend because I just didn't feel like what we were doing right now was working as well. So, we'll see how it goes. I think we can get through it pretty fast and be caught up for third grade by Sept or so. Jaden likes his class too though I wish it was more of a preschool class. Since he's 3 he's in the nursery and I think while he likes playing with the toys, he can do that at home. I'm thinking of putting him in Gymboree's School Skills class since Logey hasn't been able to go to Gymboree in like 3-4 weeks. Anyway, here are some pics of the kiddos on our way home from Corpus.I was having trouble getting the kids to look at me so I didn't get any truly great shots.

Cristian--He's seen so rarely on this blog.Logan was clapping.Jaden. : )Logan opening up his present from Dr Al-Akash at home. It was a really cute Fischer Price Piano. I'll get a pic of him playing with it later.